Well, we got Braden to Children's Hospital for his appointment for the CT Scan on his head. Everything went smooth, he was in a great mood that day. His Momo & Popo came to be with him. Initially we got good news, the shunt in Braden's head is working, it is draining the excess fluid and has caused his ventricles to recess nicely. Unfortunately, now he has some other issues. The surgeon who performed Braden's shunt insertion believes Braden has a cyst in a rear ventricle. He is certain Braden will need a procedure to correct this. Most likely Braden will need another incision to insert a seperate tubing to drain this new fluid. Dr. Weprin will connect it to the original tubing and it shouldn't be too difficult of a operation, as per the surgeon. Of course to us, we feel like its a kick in the stomach. Things had been going so well, we just hate it for Braden. All that he has been through to have to go through this, its a shame. But, we have dealt with this before and we'll get past this ordeal as well. Braden could have an MRI done as early as the end of this week and then we'll know more, such as an exact date for his procedure.
Braden is so incredibly strong and resilient it is truely inspirational. Whenever we feel sad, we just think of him and what he has went through and it helps us get past it. He is the toughest individual I have ever been around. We feel like everything will be fine, but we ask that you keep Braden in your thoughts and prayers. We know most have you have never let him out, but in the next few weeks we may need a little extra support to help him get through all of this ok. Braden is so big now! He is laughing and trying to talk all the time. He is holding his head up pretty good on his own, doing everything he should be at this age. Thanks for continuing to check back and we promise to have new pictures added in the next day or two.
Steve, Annie & Braden
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The story of a micro preemie who is beating the odds.
3 comments:
we will get the prayer chain going!
My prayers are with all of you.
Our preemie boys are the bravest people I know..... Prayers are all around you!
Lisa Lee
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