Braden has had a lot of stuff going on this month. He is eating veggies now and loving them. He went to the doctor to get his second shot for synagis and on that day, Nov. 17, he weighed 15 pounds 9 ounces. It seems to me like the veggies and ceral are staring to take effect on him. He is drinking 4 ounces of fruit juice everyday now and he drinks that so fast that he has to stop to breathe. He is doing great, he is talking up a storm and he almost can say "dada." i am a little upset about that but hey, what ever he wants to say is ok with me.
Braden went to his first motorcross this weekend. Well he did not stay outside, he stayed in a big motor home with none other than Grandma Shirley, Aunt Amber and Big Bad John, one of his best buddies. They had a great time and I was relived that he was with them.
Steve and I went to my sisters 30th birthday party Saturday night (HAPPY 30TH AUNT CLARA) and Braden went with Grandma Shirley. This was the first time since last October 2004 that Steve and I had been OUT with ADULTS for a party. I swear we have not smiled and laughed as much as we did in a long time. We danced and talked and had a great time for once since our lives had been turned upside down we were husband and wife again, we were together and it felt great to have that feeling back. Or course I called a few times to call and check on Braden but I knew he was in good hands!
Braden' great grandma had a birthday on November 18 HAPPY BIRTHDAY GRAN!! We wished we could have been there to celebrate with you. But we will have plenty of time for that.
Braden also has a new cousin. Stephanie, Steve's sister, and her husband John had a baby on Nov. 16. Jude was born in Thailand where they are living to do missonary work. Mom and baby are both fine and at home. Welcome Jude!! We cannot wait to see him.
This Thursday is Thanksgiving and boy do we have alot to be thankful for this year. We will be at home where our familes will come and eat with us and of course watch the Dallas Cowboys play. But on this Thanksgiving we will have a heavy heart for the babies and their families at NICU at Baylor in Dallas... and all babies in NICU's across the world. We will give thanks to the staff at Baylor, just as we do everyday, but more on this day, we will thank all of you reading this. If not for your thoughts, prayers, cards, phone calls and all other wonderful things you have done for us, we would not have made it this far. So with that we wish you all a Happy Thanksgiving and hope you are all safe and with the ones you love.
Monday, November 21, 2005
Thursday, November 17, 2005
Prayer Request for Madison
Hello friends! We're writing today to ask for your prayers for sweet Madison Crowder. She is 6 months old today and lives with her mom, dad and 2-year-old brother. She has been seriously ill since she was 2 weeks old and has been in and out of ICU most of her life.
Madison has a dangerous form of pneumonia that can lead to meningitis in infants. This form of meningitis is deadly. They have already drained fluid off her brain and today they will do an MRI on her spine. They are putting her on a form of life support, not to keep her breathing, but to assist her in breathing. Her breathing is very labored and her heart rate is very high. The support system will assist her heart so it doesn't have to work so hard to ease her breathing.
The Crowder family lives in Utah with no family or close friends up there to help them. They depend solely on our prayers and the grace of God to give them strength and hope to get through this very heart-wrenching time. We are all pleading with you today to please say a prayer for Madison and tell your friends and family to pray for her as well. We've attached a photo of that beautiful girl below. This sweet angel needs us, please pray for her and her family.
Thanks!
Madison has a dangerous form of pneumonia that can lead to meningitis in infants. This form of meningitis is deadly. They have already drained fluid off her brain and today they will do an MRI on her spine. They are putting her on a form of life support, not to keep her breathing, but to assist her in breathing. Her breathing is very labored and her heart rate is very high. The support system will assist her heart so it doesn't have to work so hard to ease her breathing.
The Crowder family lives in Utah with no family or close friends up there to help them. They depend solely on our prayers and the grace of God to give them strength and hope to get through this very heart-wrenching time. We are all pleading with you today to please say a prayer for Madison and tell your friends and family to pray for her as well. We've attached a photo of that beautiful girl below. This sweet angel needs us, please pray for her and her family.
Thanks!
Thursday, November 03, 2005
Braden being Braden
November has started and like every other family with small kids we are trying to avoid colds! Well, it's not so easy. Braden got a small cold and passed it to me. Then over the weekend he shared it with my mother, his MoMo. We were both sick as dogs, and little Braden was fine after a day or so. Just like a kid to bounce back like that. But with Braden we except nothing else. Which brings me to my next topic.
Braden had an eye appointment Thursday Nov. 3rd and although the doctor said that the surgery he had while at Baylor looks great, he is very near sighted and will probably require glasses sometime early next year. Now I know you are thinking, "Glasses? That's it? Oh we handle that," and true we can. But when you are his mother and on a day to day basis you are dealing with every need for this baby it hurts like nothing else to hear that he has to have one more thing to deal with. He has been through so much this year and now the start of next year will start with glasses. And yes we can handle it but that does not mean I have to like it. My nephew Jackson was another baby who battled for his life at birth and he will be 9 in December. He wears hearing aids, and we are all used to them but it hurts every time I see them. Just knowing that there our kids out there who are going through this stuff kills me. And until it happens to you or someone you know and you see it every day it is not the same. Talking to someone on the phone or through email about their special needs baby or child is nothing compared to living with that person.
We lived through it with my sister and her husband we saw it on their faces, in their body language and now Steve and I are going through the same thing. People who are living it with us hurt with us. Yes, it is just glasses but to us it is more than just glasses. Being around Steve and I -day in and day out- you can see how hard it is for us to make it one day at a time. Sleep is here and there, dinner is catch it if you can, clean clothes are a maybe. Thank goodness for dishwashers or we would drink with our hands. Steve and I have not had a night of rest where we did not have Braden to deal with. NOT THAT WE ARE COMPLAINING. But we can not tell you the last time we slept in the same bed for more the 4 hours without having to get up for Braden. We love to do this for him, we strive to do this. We are doing what every parent in the world has done and will do. BUT when you add up all that he has been through and then you put glasses on top of that mountain that he is so trying to climb, he falls back on his mommy and daddy and we are there to pick him up and try again.
We will climb many more mountains and we will fall many more times but for our little family we would like a small hill for once. Something we can just get over, sit down, and enjoy the ride... without doctors or medicine or oxygen or Sleep Study Tests. But like all the other stuff we have been through in our short time as a family, we will be just fine with whatever life brings. Glasses, compared to other things that could have happened, are not that bad. But as a mom speaking from my heart and all the love that I have for my son, it hurts like nothing else knowing one more battle for my little guy to overcome. And I know he will be fine and then I will wonder what was I so worried about. He will live to prove me wrong. Jackson proves us wrong everyday!!
We are very happy about the holiday season coming up. We will be spending it at home and I am sure family will be coming around. Braden is still to small to grasp Santa and all that fun stuff but we are still going to do milk and cookies, and writing a letter.
Braden watch his first Mav's game with his daddy and loved it. Below is a picture of him getting pumped for the big game. He also watches the Cowboys with his PoPo, Uncle Chris and Uncle Leroy and he is always ready for a good football game.
So with this I will try to get myself back in order before I see my son and just hide my emotions in front of him and cry later, just like every other good mother in world does!
Braden had an eye appointment Thursday Nov. 3rd and although the doctor said that the surgery he had while at Baylor looks great, he is very near sighted and will probably require glasses sometime early next year. Now I know you are thinking, "Glasses? That's it? Oh we handle that," and true we can. But when you are his mother and on a day to day basis you are dealing with every need for this baby it hurts like nothing else to hear that he has to have one more thing to deal with. He has been through so much this year and now the start of next year will start with glasses. And yes we can handle it but that does not mean I have to like it. My nephew Jackson was another baby who battled for his life at birth and he will be 9 in December. He wears hearing aids, and we are all used to them but it hurts every time I see them. Just knowing that there our kids out there who are going through this stuff kills me. And until it happens to you or someone you know and you see it every day it is not the same. Talking to someone on the phone or through email about their special needs baby or child is nothing compared to living with that person.
We lived through it with my sister and her husband we saw it on their faces, in their body language and now Steve and I are going through the same thing. People who are living it with us hurt with us. Yes, it is just glasses but to us it is more than just glasses. Being around Steve and I -day in and day out- you can see how hard it is for us to make it one day at a time. Sleep is here and there, dinner is catch it if you can, clean clothes are a maybe. Thank goodness for dishwashers or we would drink with our hands. Steve and I have not had a night of rest where we did not have Braden to deal with. NOT THAT WE ARE COMPLAINING. But we can not tell you the last time we slept in the same bed for more the 4 hours without having to get up for Braden. We love to do this for him, we strive to do this. We are doing what every parent in the world has done and will do. BUT when you add up all that he has been through and then you put glasses on top of that mountain that he is so trying to climb, he falls back on his mommy and daddy and we are there to pick him up and try again.
We will climb many more mountains and we will fall many more times but for our little family we would like a small hill for once. Something we can just get over, sit down, and enjoy the ride... without doctors or medicine or oxygen or Sleep Study Tests. But like all the other stuff we have been through in our short time as a family, we will be just fine with whatever life brings. Glasses, compared to other things that could have happened, are not that bad. But as a mom speaking from my heart and all the love that I have for my son, it hurts like nothing else knowing one more battle for my little guy to overcome. And I know he will be fine and then I will wonder what was I so worried about. He will live to prove me wrong. Jackson proves us wrong everyday!!
We are very happy about the holiday season coming up. We will be spending it at home and I am sure family will be coming around. Braden is still to small to grasp Santa and all that fun stuff but we are still going to do milk and cookies, and writing a letter.
Braden watch his first Mav's game with his daddy and loved it. Below is a picture of him getting pumped for the big game. He also watches the Cowboys with his PoPo, Uncle Chris and Uncle Leroy and he is always ready for a good football game.
So with this I will try to get myself back in order before I see my son and just hide my emotions in front of him and cry later, just like every other good mother in world does!
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